Resolution of sorts.

Well, the situation in Seattle is not as hopeful as was believed. Raisa continues to put up a fight and her parents are making some decisions about her care as the days go on. Kidney, breathing and learning difficulties can be dealt with but a complete vegetative state will not happen. They are going to begin cutting back on the sedation beginning tomorrow so they can get a better understanding of her brain function. On the drugs it would appear that she has lost all higher brain function but her parents are not giving up on her yet. The next few days will decide what will happen with our precious baby girl's life.
India wanted to say something to her family while they are separated. I tried to get Phaedra to say something on an earlier video but all she did was pull faces and smile bashfully. I'll try again later.

The girls are going to stay with us until this is all finished so their parents know where they are at and they don't have to call around to find them when they have news. This is the bumpiest ride, emotionally, that I have ever been on and I can't imagine how exhausting and draining it has been to the parents. I still covet prayers for her safe return to us and as Kathy Montgomery said yesterday, "It ain't over until it's over!"
~Pam

Prayer!

Raisa was flown to Seattle Children's Hospital last night. She made the trip and is now safely in the PICU. The panic that some may have heard about last night was false information. If you don't know what I'm talking about then don't worry about it. We still haven't heard from Tony since he checked into the PICU at about midnight, Washington time. Mom called the hospital and the nurse at the nurse's station in the PICU assured her that Raisa was there and she was alive. We have a message at the nurse's station for Tony to call us, no emergency just want information. Tony... If you are reading this then CALL US!!!!!!!
The whole "family" down here was up all night in prayer and I'm not going to church today so I can wait by the phone and India should be coming today.
~Pam

I guess the setbacks have begun.

Raisa was put back on the other respirator today. The other one was too much for her poor lungs to deal with. Unfortunately, it caused more damage to her left lung (the good one) so that her CO2 levels are too high now. They aren't at panic levels but too high is too high. The new respirator causes her lungs to stay inflated, not infalte and deflate. Her ph is a little too high as well. I remembered to ask about the MRSA and it is still being controlled with the same antibiotics. The pocket in her chest cavity is refilling and they had to put the tube back in her chest. It's a couple steps backward but at least it was not total and catastrophic failure. There is still hope and He's still on the throne, totally in control of the situation. Her heart continues to beat regular and strong.
In other news, Riley, Kathy's nearly two year old grandson may have chickenpox. I am considering telling Tony and Kiki so the girls, India and Phaedra can come and be exposed. On the other hand, I think India has had chickenpox and I don't think Phaedra's daddy could intentionally make her sick right now. Riley's mother was hoping that he doesn't have it until Kathy and Mom told her that it's better for him to get it now. Chances are it'll be a milder infection, it's easier to deal with in a child his age and having your body fight a naturally occuring infection is infinitely superior to being vaccinated. Oh, have I posted a rant on vaccines yet? No... I guess that'll have to come when the current crisis is resolved.
Night,
~Pam

It keeps getting better and better!

Yesterday the doctors took all of the IV ports out of one of Raisa's arms so she only has two of them now, one in one arm and one in the top of her head. She is off of the beta blocker and the epinephrine that was keeping her heart beating correctly and she is doing wonderfully. Her sedation has been lessened as well and is now being given to her through her feeding tube instead of IV. They are still waiting for her lungs to heal some more before they can take her off the respirator and wake her up all the way. I still don't know when she might be able to have visitors but hopefully she will off the respirator in less than a week. I might go up with Pastor and Anita next week, Monday or Tuesday to see them. I had wanted to go today since it's a no work/no pay day for Mom but then she started talking about all the things that needed to be done and I knew I couldn't go today. I've been a ball of stress and regret today but hopefully I can go next week.
I guess that's all today. I might try and post some pictures of the eruption that I actually saw come out of Redoubt but I might do that later. Either way, stay tuned!
~Pam

Wonderful News!!!!

No, Raisa is not 100%. She is still critical and in a coma and isolated. The wonderful news is that her surgery went so great that the surgeons were able to move one of her drainage tubes while they had her on the table putting her on the different dialysis. It's great that she was so strong that they felt comfortable doing that. And, Tony talked to the kidney doctor, for the first time by the way, and was told that he expects her kidneys to come back 100%. They are shut down but she is not in renal failure as I feared. I've heard of this but not that often. I guess serious illness shuts them down without damaging them so they can bounce back when the body isn't dealing with so many toxins. Strange!
Anyway, I really hope the housing situation is straightened out by tomorrow since Tony's room was only rented for two days. He said he's going back to Hickel House tomorrow so I guess it's all right. Kiki told the nurse that she would camp out on a couch in the PICU if she had to but I really hope it doesn't come to that.
The big ball of stress in my chest has eased somewhat and I can finally draw a deep breath and think of what it's going to be like when she gets home. I know that her life is still in danger but I'm really hopeful that she's going to come home. Every day that she doesn't get another infection is another day that her lungs have to heal so I've been going one day at a time.
Well, we stayed at the pastor's house too late tonight and I'm sooooooo tired so g'night.
~Pam

What craziness!!!!

Well, no surgery today. The two children who were scheduled ahead of her went a little long so by the time the surgeon was ready for her she had been off dialysis too long so they decided to just hook her back up and do the surgery at a later date. Tony will call with an update about that tomorrow.
In other trying news, both Kiki and Tony have been kicked out of Hickel House, the hotel for families right behind Providence. Kiki didn't want a room with Tony since she has her boyfriend with her and the tension there was not good. The nurse she talked to thought she was trying to make Denali Kid Care pay for another room but Kiki was willing to pay for another room. She can't afford a hotel room and cab fare so instead she came home. Tony was told that the room he was in belonged to Kiki so he had to leave. Someone was kind enough to rent him a room in a hotel and he has Mom's van so he and Phaedra are in a hotel room tonight. Kiki, hopefully, will be able to go back up tomorrow since the room situation was straightened out after she left. I am really furious with that insane nurse. What kind of woman yells at the mother of a critically ill infant? I understand that she thought Kiki was trying to do them wrong but give me a break! I talked to Kiki a little bit tonight and hopefully helped her realize a little bit of the other side of this situation. She doesn't understand what Tony's problem is since they are getting divorced, he shouldn't be such a jerk around Eric. I told her that it's really hard for a man, and kids for that matter, to watch someone else moving in on his family. Kiki's parents are still married so this is not a situation she is familiar with. Her first husband, India's father, disappeared for five years while Tony was establishing himself as the dad in that family. But Tony isn't leaving so Eric can move in and maybe that's what's got her so confused. Anyway, I really hope they can get something worked out so the tension isn't so high. I know it's not good for either of them and it's not good for Phaedra to be in the middle of it. Not that she's being fought over, just that it's not good for her to be in such a tense situation.
I think before this is done that I might just polish the outside of my house. It's been really stress-relieving to be cleaning all day but it's really killing my back. I'm not sure I'll be able to get the whole thing cleaned but I can't just sit around all day waiting for news either. It's kind a lose-lose situation. Well, I get a clean house so that's not entirely lose there. I guess I've rambled enough.
Night,
~Pam

Some good, some bad

Raisa had a CAT Scan today and she does indeed have some brain damage. They won't be able to tell how severe it is until she wakes up. She is scheduled for surgery tomorrow to put her on the other type of dialysis. I guess her right lung is still severely damaged and and her left lung isn't as healthy as the doctors thought it was. The surgery is one that can be done right in the ICU but the risk of infection is too great so they are doing it in the operating room. They are watching her very carefully to catch any potential infections. The doctor also said that the possibility exists that she will have to be on dialysis for the rest of her life. I don't think that's the end of the world though. People live for decades on dialysis and the possibility of a transplant exists until we get socialized medicine. Hopefully our president will not get that accomplished until she has either healed, or has a new kidney. I know that sounds like all bad news but the fact that I didn't have to post about her funeral makes it amazing, wonderful and very optimistic news.
Tony said that since moving onto the other respirator her color is amazing and her fluid retention is still going down so the Lord continues to heal her tiny body even as the doctors fret about what-ifs. I continue to praise Him and take comfort in the fact that, should her time here be just about over, I will see her again!
India is still with Brad and Phaedra is still her daddy's steadying hand and his grounding rod. As hard as it is on me to not have either of them here I can't complain since they are where they need to be.
I'll post the outcome of her surgery tomorrow, as soon as I know how everything went.
Night,
~Pam

New developments

Raisa continues to improve. They switched respirators yesterday. Instead of the kind that blows small, quick puffs, she is now taking full, deep breaths. While they were switching machines, she continued to breath on her own. The tube in the left side of her chest has been taken out but there's still a tiny tear in her right lung so she is still draining from that side. She is being taken off dialysis and they are going to irrigate her abdominal cavity instead. Her fluid retention is coming down so they feel safe discontinuing the dialysis. The doctor feels that cleaning out her abdominal cavity will help with the fluid as well.
I think she is scheduled for a CAT Scan today but I can't remember if it's today or not. The doctors say there's a possibility of brain damage but it's my opinion that, so long as it isn't severe, her brain is still young enough to compensate for the damage. And even if it is severe, WHO CARES! She's still Raisa and we will all still love her!
The Lord continues to move in mighty ways in the Providence Hospital PICU. The setbacks that they were expecting haven't happened and we're praying that they never do and she continues to get stronger and stronger. The timeline is the same, a couple more weeks and she can either some home or get transferred down here. I hope they keep her till she can come home since this hospital is not at all the best place for a sick person.
Phaedra is in Anchorage with her daddy while India's father has her at Kiki's house. I don't know how long Brad is in town so I don't know when India is coming back. I imagine Tony is going to keep Phaedra until India's father is gone or tensions get to be too much for her in Anchorage. He doesn't think it's fair that India can spend time with her dad and Phaedra can't. This makes me realize more and more how badly I want my own children. I have nothing to do now except think and that's not fun under the circumstances. I can't tell them how hard this is on me since I can't see any of them and I want my kids back! Man this is hard!
Well, at least I have the time and energy to give the house the thorough cleaning it so desperately needs now. Besides, cleaning helps me relax and destress and I could really use some of that now.
Later,
~Pam

How great is our God?

Raisa's infection was identified today as MRSA. WebMD has this to say about this nasty bug.

"Methicillin-resistant Staphylococcus aureus (MRSA) are a type of staphylococcus or "staph" bacteria that are resistant to many antibiotics. Staph bacteria, like other kinds of bacteria, normally live on your skin and in your nose, usually without causing problems. MRSA is different from other types of staph because it cannot be treated with certain antibiotics such as methicillin.

Staph bacteria only become a problem when they cause infection. For some people, especially those who are weak or ill, these infections can become serious.

MRSA infections are more difficult to treat than ordinary staph infections. This is because the strains of staph that are known as MRSA do not respond well to many types of antibiotics-the types of medicines that are normally used to kill bacteria. When methicillin and other common antibiotic medicines do not kill the bacteria that is causing an infection, it becomes harder to get rid of the infection.

MRSA bacteria are more likely to develop when antibiotics are used too often or are not used correctly. Given enough time, bacteria can outsmart antibiotics so that these medicines no longer work well. This is why MRSA and other antibiotic-resistant bacteria are sometimes called "super bugs."

Sounds pretty nasty huh? But the Lord was all over it and led the doctors to give her an effective antibiotic from the beginning. They discontinued the other three, that weren't doing anything and put her on two different ones that they know will combat this strain. She is still in critical condition and MRSA is contagious so her mommy and daddy are still the only ones allowed to see her but we're taking India and Phaedra up tomorrow anyway, to visit their parents. Tony was almost in tears when I told him we're bringing them and we're leaving him the van. Kiki's mom and boyfriend are up there right now and Tony deosn't care for either one of them. I presume he has been stuck at the hospital since he got there while the other three are free to come and go as they please. Unfair to say the least. Anyway, tomorrow is going to be crazy so, night all.

~Pam

Raisa Update

I called Kiki this morning and have some new information.
The infection is in her blood and it may be a combination of three different bacteria, two bacteria that are growing differently or just one that is growing three different ways. They should know what strain of bacteria they are dealing with in the next 24 hours. She is on dialysis to help her little kidneys filter the antibiotics out of her system. Without the dialysis, fluid would build up and they absolutely don't want that. The ball of infection in her chest is being drained and her stomach is draining as well so the pressure has eased on her lungs and heart.
The blood that she was puking up was from an ulcer. Her body was so stressed from fighting the infection that she got an ULCER! Her body was fighting so hard that she wasn't showing signs of being sick until it was almost too late. When she got to Anchorage they induced her coma and she flatlined. They were prepared for it and she was intubated and put on a drug to make her heart beat correctly immediately. It is necessary to keep her under so that her body quits fighting itself while the bacteria just multiplies.
Her extremities are receiving the correct amount of blood now and she is not going to lose any toes or fingers but she does have some spots of pooled blood in her skin that will fall off and heal kind of like frostbite. She is responding to stimulus when she comes out from under the drugs occasionally.
Best case scenario, no major setbacks, she is looking at being in Anchorage for three weeks. Her birthday is in three weeks. My poor Raisa will probably spend her first birthday in the hospital. Right now, because she is so weak and susceptible to germs, Tony and Kiki are the only people allowed in the PICU, other than staff. We're planning on taking the girls up early next week so they can all have family time, even if the girls can't see Raisa yet. And, it appears that both Tony and Kiki are going to stay in Anchorage until she comes home so the girls are with me until then. PRAY FOR ME!!!!!!!! :)
Night,
~Pam